Those interested in participating should arrive at the Sun Bowl. Registration begins at 12:30 p.m. and walkers depart promptly at 1:30 p.m.
The walk entrance fee is $25 per adult. Tickets to the Saturday evening Dinner & Auction may be purchased for $50.
Walkers should bring their own equipment or borrow snowshoes or poles that have been donated by Grafton Ponds Outdoor Center in Grafton.
Founded on Feb. 17, 2010, the Connecticut Hemophilia Society, Inc., or CHS, is a non-profit corporation that is dedicated to improving the quality of life of persons with bleeding disorders and their families. People who have an inherited bleeding disorder do not naturally produce one or more of the proteins needed to clot blood properly.
The result is internal bleeding episodes that can cause intense pain, permanent joint damage, and, in some case, life-threatening emergencies. This is a rare and costly disorder, which can add a sense of isolation as well as emotional and financial stress. CHS aims to break through that isolation by creating educational and support programs that create long-lasting connections and, in turn, an active and aware community. CHS serves affected people throughout the arcs of their lives. For more information, including registration, dinner tickets, sponsorship opportunities and how to donate
About the walk and hemophilia: The brainchild of former Stratton Mountain residents Mark and Ina Katzman, the first Alpine Snowshoe Walk was organized and held the year after the Katzman's first grandson, Blake, was born and diagnosed with hemophilia.
While most everyone understands that hemophilia is an inherited bleeding disorder, most are surprised to learn that the disorder can spontaneously appear in children whose parents don't have the disorder. This was the case with Blake.
After a series of medical procedures and with the now daily intravenous doses of clotting factor, Blake is doing well and is living the life of a normal, healthy eight year old. Almost. There is no cure for hemophilia but with funding and research there is hope for every child, parent, or grandparent of a child who faces the challenges of living with bleeding disorders.
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